Transplant Done

It's only the start of the process but Eve has had her stem cells today. All went well. The next few weeks are critical.

Excellent news Richard - a relief it's off to a good start

Best wishes for Eve, Richard, hope it all moves onwards and upwards.

Total admiration at your family's strength and positive outlook.


Regards.

Good news and good luck to Eve

Keeping everything crossed for you

Hope it all works out, Richard.

Hope that Eve has an easy time with the treatment, and a positive outcome in the following weeks.

Wishing you the best of outcomes.

Thank you, everyone. All ok so far.

Very best wishes to Eve, Rich. Thinking of you and yours.

Best wishes MRS

My best wishes to you and every one, I cant imagen what you are all going though but i do hope it gets better

Thanks again, folks. Apart from a trip to the CT scanner at 5.15am today, all is going pretty well. Still very early days.

absolutely everything cross for you all xx

Best wishes MRS like everyone else thoughts are with you all and everything crossed. Stay strong!

Quick update. Day +11 and she's not suffering too badly from the after effects of the chemo. She's had a couple of temp spikes but they are totally expected. All-in-all she's doing incredibly well. Just hope the stem cells are busy doing their stuff. Still a week or so before we'll get any indication. It's a cliche, but one day at a time.

Tragic news this morning that one of the terminal cases died this morning. RIP young lady. Very sad and a somber mood on the ward. Was just one of those cases where nothing went to plan. Desperate.

good to hear this news MRS still everything crossed for you all.

Latest news is that she has some neutrophil count today which could be a really good sign.

Tough times again for you and family Richard ,thinking of you all.

This sounds like good news for Eve, though it must be heartbreaking for the treatment community when other sufferers succumb. We think of you and your family often. Would be great to catch up when we both find a few minutes!

Thanks, folks. Look forward to it, Jim.

All is going incredibly well. Her blood counts are shooting up and she maybe going home a week earlier than planned. Her feeding tube, which she never really needed, has come out and by the end of the day she should be off all pumps/infusions. She really has confounded all expectations.

Still very early days and much can still go wrong but the bit has gone really really well. She's worked really hard for it too - doing everything she was advised to do diligently.

Wonderful news.

Excellent indeed.

I hope it all continues well

Heart warming news.

Thanks, folks!

She's just been told she can go home. We'll probably postpone until tomorrow to give us a chance to get sorted and for them to tell us how Eve should be looking after herself at home and what things to come in for. It's always a bit scary having that responsibility- similar feeling to taking home your first baby for those who are parents.

Fantastic news. Hope everything keeps moving in the right direction.

And in the way new parents find the way you and your family will too. Fingers crossed for the continuing good news and improvements

this is amazing news to read MRS, It must feel so wonderful to have your daughter home again. Still everything crossed for you all going forward.

Fantastic news MRS, hope she makes a full recovery!

Best wished Rich i bet it is a worrying but really nice feeling to have her home!

Tough last couple of weeks with Eve getting a reactivation of cytomegalovirus and then a case of BK (another unpleasant virus). Today the results for both came back as clear so I hope we are through that. Another test tomorrow to confirm.

In the meantime young Hugh got the results he needed to get to Strathclyde to do software engineering. He's been a total star through all of this: looked after the house (kinda ), the 3 dogs, passed his driving test first time, got a job at Tesco and got his exam grades - at 17 all whilst his parents are away for 7 months looking after his seriously ill sister. It's no wonder he was chosen back in 2012 to carry the Olympic torch through the centre of Inverness.

By-the-by, Mrs MRS passed Higher Latin with an A. Some people run a marathon when they're 50, she decided to learn Latin from scratch.

You truly do have a gifted family, MRS.
Mind you, I'd expect nothing less from your son with such a great name, even if he has the second best spelling . (Smiley wouldn't go here).

Best wishes to you all, as ever.

really hope the test all comes out in your daughter favour MRS, and huge well done to Hugh and your good lady wife. that is all very impressive stuff. Sounds like you need to pick something to study to keep up with them

Thank you.

I've gone from being a complete numpty on medical device quality systems and regulations to something of an expert in the last 12-15 years. That's been a really steep learning curve but I'm really glad I've done it as it has been a fantastic career move. I'm now learning about global domestic electronic product regulations. I don't think my brain has any more capacity

MRS Jnr2 got into University of Glasgow which is great as he'll be there when Eve eventually gets back. I like the idea that they can keep an eye on each other. Glasgow was going to reject Hughie out of hand but Eve shamed them on social media into looking properly at him. Brave girl - she was working on this whilst they were trying (and failing horribly) to fit her with a catheter. Tough kid.

What a great story!

Your kids (and you and Mrs MRS) could give lessons in resilience.

Needs must when the devil sh*ts in your coffee cup, Jim

Latest test result shows that Eve is clear of any sign of leukaemia. Massive relief (and the odd tear) here.

Still a way to go to recover from transplant but obviously a massive hurdle.

Excellent news, Richard.

wow i think you're allowed the odd tear Rich. Good news. Onwards and upwards.Best wishes to you all.

Great news

Glad to hear it.

Such great news. If I believed in it, I would now expect karma to bring Eve and all of you many good things. And may this be the last thread of its kind!

Excellent news

Onwards and upwards!

Thank you all. Still a long way to go but it's real progress..

one good big step forward MRS So pleased for you all .

Jeeez, just finished reading both threads about Eve and the trials and tribulations you're all going through. I can't even imagine how (as a parent myself) you cope with one such diagnosis, let alone a second child having to endure something similar.

I know you sort of say you have no choice but to go through it once diagnosed, I get that, but you have all gone through it remarkably strongly and with what appears to be an especially close-knit togetherness which is totally admirable.

Like everyone else on here and no doubt in the real world, I wish Eve, Charlie and Hughie the very best in their young lives from this day forward, God knows they deserve it.
As for you and Mrs MRS I have nothing but total respect for the way you've coped and conducted yourselves. A proper example to anyone in this invidious position.

Thanks, Proccy, and everyone else.

I won't pretend it hasn't been tough because, by god, it has. I'm utterly forked and I know Mrs MRS is too - let alone Eve who has actually had to do the difficult bit. You have to learn to cut each other a lot of slack.

Something else I realised is this: Mrs MRS said that Eve can be so nasty to her at times. What I explained is that Eve is only nasty because she trusts us totally and knows she can vent at us. Mrs MRS has shared that insight with a few parents on the ward and it has really helped. Cancer treatment is brutal on everybody.

My boys have been great too - as have our extended families who feel pretty helpless, my colleagues, friends and you lot. As I said when Charlie was being treated: knowing that people are rooting for you when you go through the dark, scary, bits really helps.

Thank you from the bottom of my heart. One day I'll have to introduce myself and Eve and Charlie to you all.

You make an excellent point there Richard, the mental effect can often be ignored as a co-habitant of physical problems. There's still a culture of "oh just get on with it" in spite of the recent realisations that serving armed forces for example have a tough time post-conflict.

Really can understand your point about Eve being able to vent with family members, without that safety valve I am sure it would have been much more difficult in many ways. Hope you all have some time for fun and family time moving forwards.